Satya Jewelry

“On September 16th, 2005 my sister gave birth to a beautiful baby boy
who has EB. Although living with the condition on a daily basis is a lot
of work, he is doing well and is very healthy despite his skin ailments.
I want to do my part to help support the cause.”
- Angela Henderson, Kapaa, Hawaii

“My son has EB and I saw this necklace in People magazine. I forwarded the info to all of my friends and family and we gathered an order for 14 all together. Thank you so much for offering an AFFORDABLE product that benefits this cause!!”
-Dawn Dixon, Covington, Indiana

“My mother is ordering this necklace in honor of her great niece who is 16 years old. She is an EB child who loves to ride horses! She refuses to be told that she can’t ride her beloved horse and does so every day. She blisters on her legs and feet from riding and never complains. We won’t give up hope that one day she will be cured.”
-Becky King, Montello, Wisconsin

“I am a friend of Andrea Pett at Brillstein Grey and am ordering this necklace to support her in her fight against EB. Thanks for your positive effort! My company “Eccentric Symphony” and my partner made the donation to EB as promised to Andrea.”
-Nikki Lund, Encino, California

“My nephew, Shane DiGiovanna who is almost 9 has EB. Thank you so much for creating such a beautiful necklace and raising funds and awareness for this cause!!”
-Joanie Hosp, Cohasset, Massachusestts

“My son was born with EB and it has been a constant struggle. I am
grateful to any awareness and charitable efforts made in the hopes of
finding a cure. My son suffers every day in pain, it’s nice to know
there are people who care. Thank you!”
-Rondi Kratzer, Allentown, Pennsylvania

“Wonderful website… saw necklace in People magazine and loved it.
Thank you”
-Sharri Lungarini, Ansonia, Conneticut

“Thanks, I am ordering in remembrance of my little girl Brynn. (www.beheartstrings.com)”
- Elaine Suddes, B.C., Canada

“My son has EB. Thank you for supporting the research.”
-Claire Saunders, Austin, Texas

“I am looking forward very much to receiving this beautiful necklace. Thanks for having such beautiful items at reasonable prices.”
-Vicki Moldafsky, Saint Louis, Missouri

“Hello Satya and Beth,
My name is Loretta Barnes and I have a daughter who was born with EB. She is 27 years old and has suffered with this disease all of her life. This mother’s day she presented me with the butterfly necklace and I cannot tell you how beautiful it is, and how touched I was to have received one.

Thank you for touching their lives through your generosity.”

Sincerely,

Loretta Barnes

” My Grandmother had EB simplex which was passed to my father and then passed to my brother and me. Of my brother’s three children, all were lucky and are EB free; I have one child, Rachel who has it. I only pray that through efforts like yours, by the time she is ready to have children there will be a way to spare them from this disease. And we in my family are the lucky ones — only having EB simplex means the pain and inconvenience of bad blisters on our feet. My heart goes out for the mothers of children whose conditions are far more severe. I think it is wonderful that you are creating this special way to contribute to EBMRF.”
-Gerri Patterson, Memphis, Tennesee

“Thank you for donating the money towards epidermolysis bullosa research!! My daughter has EB, she is 18 months old. We never heard of EB until she was born. More and more people are learning what it is, and hopefully with more awareness…will hopefully lead to a cure!!! Also, I am getting so many compliments on the necklace, which serves as a conversation starter to discuss EB!”
-Susan Mamula, Hilliard, Ohio

“Thank you so very much. I have ordered one for me and my mom, as we are both mom’s of butterflies. We have had this in our family now for 4 generations. I can live with this for the rest of my life but God knows I dream of a cure for our Katie. (She is 5 years old and has DDEB) This disorder almost took my life at 16 and I don’t want that to happen to my child or anybody else’s. Thank you just doesn’t seem enough. Bless all of you.”
-The Wards, Williamsburg, Virginia

“Dear Satya
I am the adoptive mother of three children with Epidermolysis Bullosa and just received my order of EB Butterfly Necklaces. I want to thank you for partnering with EBMRF and creating this delicate necklace that my 12 year old daughter, Brandi, and I have vowed to each wear until a cure is found for this devastating disease. It is so light weight that it will not damage my daughter’s delicate skin and if this feature was deliberate to meet the needs of EB children - an extra Thank You for being sensitive to their needs.”
-Lana Coil, mother to Corey (14), Alex (13) & Brandi (12) RDEB
Grass Valley, California

” May God help find a cure for EB! Thank you for your support!”
-Mary Christman, Eaton, Ohio

“I ordered 7 initially but these are so great, I’m ordering more for Christmas presents, and more towards EB research!!! I pray for a cure for EB! “
-Debbie Shandil, Beaverton, Oregon